{"id":1854,"date":"2024-10-28T17:42:41","date_gmt":"2024-10-28T22:42:41","guid":{"rendered":"https:\/\/webn.acopel.org.co\/?page_id=1854"},"modified":"2024-10-31T10:05:09","modified_gmt":"2024-10-31T15:05:09","slug":"incidencia-gubernamental","status":"publish","type":"page","link":"https:\/\/acopel.org.co\/webn\/incidencia-gubernamental\/","title":{"rendered":"Incidencia Gubernamental"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row full_width=&#8221;stretch_row&#8221; equal_height=&#8221;yes&#8221; content_placement=&#8221;middle&#8221; parallax=&#8221;1&#8243; parallax_image=&#8221;1922&#8243; isfullwidth=&#8221;0&#8243; css=&#8221;.vc_custom_1730387104337{margin-top: 0px !important;padding-top: 40px !important;padding-bottom: 40px !important;}&#8221;][vc_column width=&#8221;1\/4&#8243; css=&#8221;.vc_custom_1726085190106{padding-top: 30px !important;padding-bottom: 50px !important;}&#8221;][vc_single_image image=&#8221;1856&#8243; img_size=&#8221;full&#8221; css_animation=&#8221;fadeInUp&#8221; css=&#8221;&#8221;][\/vc_column][vc_column width=&#8221;3\/4&#8243;][vc_empty_space height=&#8221;40px&#8221;][vc_custom_heading text=&#8221;Objetivo:&#8221; font_container=&#8221;tag:h2|font_size:32px|text_align:left|color:%231d3e8f&#8221; use_theme_fonts=&#8221;yes&#8221; css_animation=&#8221;fadeInRight&#8221; css=&#8221;&#8221;][vc_custom_heading text=&#8221;Crear REDES y acciones para la participaci\u00f3n en la formulaci\u00f3n, implementaci\u00f3n y evaluaci\u00f3n de pol\u00edticas p\u00fablicas que impactan a pacientes con EH.&#8221; font_container=&#8221;tag:h2|font_size:18px|text_align:left|color:%231d3e8f&#8221; use_theme_fonts=&#8221;yes&#8221; css_animation=&#8221;fadeInRight&#8221; css=&#8221;&#8221;][\/vc_column][\/vc_row][vc_row][vc_column][vc_separator color=&#8221;custom&#8221; border_width=&#8221;2&#8243; css=&#8221;.vc_custom_1730155689884{margin-top: 0px !important;}&#8221; accent_color=&#8221;#1d3e8f&#8221;][vc_custom_heading text=&#8221;Acciones:&#8221; font_container=&#8221;tag:h2|font_size:32px|text_align:left|color:%231d3e8f&#8221; use_theme_fonts=&#8221;yes&#8221; css_animation=&#8221;fadeInRight&#8221; css=&#8221;&#8221;][vc_row_inner][vc_column_inner width=&#8221;1\/2&#8243;][vc_column_text css_animation=&#8221;fadeInUp&#8221; css=&#8221;&#8221;]<\/p>\n<ul>\n<li>Participar e influir en la formulaci\u00f3n, modificaci\u00f3n de pol\u00edticas p\u00fablicas y legislaci\u00f3n que aborden directamente las EH, en diferentes espacios y actores como: la Mesa Nacional de Enfermedades Hu\u00e9rfanas, Mesas Regionales, ENHU, atendiendo a consultas por parte de la rama legislativa y judicial.<\/li>\n<li>Participaci\u00f3n y construcci\u00f3n en el grupo-equipo colaborativo: Ruta de Enfermedades Hu\u00e9rfanas.<\/li>\n<li>Generar redes de apoyo con otras organizaciones interesadas, defensores y expertos de EH.<\/li>\n<li>Mediante la participaci\u00f3n como sociedad civil hacer control de las pol\u00edticas que se han implementado.<\/li>\n<li>Fomentar la creaci\u00f3n de una mesa intersectorial que incluya el sector educativo, laboral, integraci\u00f3n social, llevando la propuesta a la Mesa Nacional y Mesas Regionales.<\/li>\n<li>Continuar promoviendo espacios con entidades como IETS e INVIMA.<\/li>\n<li>Ser la voz de los pacientes y representarlos en todas las instancias.<\/li>\n<\/ul>\n<p>[\/vc_column_text][\/vc_column_inner][vc_column_inner width=&#8221;1\/2&#8243;][vc_single_image image=&#8221;1913&#8243; img_size=&#8221;full&#8221; css_animation=&#8221;zoomIn&#8221; css=&#8221;&#8221;][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row full_width=&#8221;stretch_row&#8221; css=&#8221;.vc_custom_1730386732132{background-image: url(https:\/\/webn.acopel.org.co\/wp-content\/uploads\/2024\/10\/footer_secciones_inicidencia.png?id=1915) !important;}&#8221;][vc_column][vc_empty_space height=&#8221;100px&#8221;][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>[vc_row full_width=&#8221;stretch_row&#8221; equal_height=&#8221;yes&#8221; content_placement=&#8221;middle&#8221; parallax=&#8221;1&#8243; parallax_image=&#8221;1922&#8243; isfullwidth=&#8221;0&#8243; css=&#8221;.vc_custom_1730387104337{margin-top: 0px !important;padding-top: 40px !important;padding-bottom: 40px !important;}&#8221;][vc_column width=&#8221;1\/4&#8243; css=&#8221;.vc_custom_1726085190106{padding-top: 30px !important;padding-bottom: 50px !important;}&#8221;][vc_single_image image=&#8221;1856&#8243; img_size=&#8221;full&#8221; css_animation=&#8221;fadeInUp&#8221; css=&#8221;&#8221;][\/vc_column][vc_column width=&#8221;3\/4&#8243;][vc_empty_space height=&#8221;40px&#8221;][vc_custom_heading text=&#8221;Objetivo:&#8221; font_container=&#8221;tag:h2|font_size:32px|text_align:left|color:%231d3e8f&#8221; use_theme_fonts=&#8221;yes&#8221; css_animation=&#8221;fadeInRight&#8221; css=&#8221;&#8221;][vc_custom_heading text=&#8221;Crear REDES y acciones para la participaci\u00f3n en la formulaci\u00f3n, implementaci\u00f3n y evaluaci\u00f3n de pol\u00edticas p\u00fablicas que impactan a pacientes con EH.&#8221; font_container=&#8221;tag:h2|font_size:18px|text_align:left|color:%231d3e8f&#8221; use_theme_fonts=&#8221;yes&#8221; &hellip; <br \/><a href=\"https:\/\/acopel.org.co\/webn\/incidencia-gubernamental\/\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">Incidencia Gubernamental<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"give_campaign_id":0,"footnotes":""},"categories":[32],"class_list":["post-1854","page","type-page","status-publish","hentry","category-ejes-estrategicos"],"campaignId":"","_links":{"self":[{"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/pages\/1854","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/comments?post=1854"}],"version-history":[{"count":0,"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/pages\/1854\/revisions"}],"wp:attachment":[{"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/media?parent=1854"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/categories?post=1854"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}