{"id":1638,"date":"2024-09-11T12:37:07","date_gmt":"2024-09-11T17:37:07","guid":{"rendered":"https:\/\/webn.acopel.org.co\/?page_id=1638"},"modified":"2025-03-29T09:14:49","modified_gmt":"2025-03-29T14:14:49","slug":"quienes-somos","status":"publish","type":"page","link":"https:\/\/acopel.org.co\/webn\/quienes-somos\/","title":{"rendered":"Quienes Somos"},"content":{"rendered":"

[vc_row][vc_column][vc_empty_space height=”40px”][vc_empty_space height=”30px”][\/vc_column][\/vc_row][vc_row][vc_column width=”1\/2″][vc_empty_space height=”50px”][apus_video image=”1636″ video_link=”https:\/\/www.youtube.com\/watch?v=thYGauBz5sA”][vc_btn title=”Conoce nuestra historia aqu\u00ed” style=”outline-custom” outline_custom_color=”#008ecf” outline_custom_hover_background=”#008ecf” outline_custom_hover_text=”#ffffff” shape=”round” css=”.vc_custom_1726078657420{margin-top: 20px !important;}” link=”url:https%3A%2F%2Fwww.acopel.org.co%2F25aniversario%2F|title:25%20a%C3%B1os%20de%20Acopel|target:_blank”][\/vc_column][vc_column width=”1\/2″ css=”.vc_custom_1493716942055{padding-left: 45px !important;}”][vc_custom_heading text=”\u00bfQuienes Somos?” font_container=”tag:h2|text_align:left|color:%23008ecf” use_theme_fonts=”yes” css=”.vc_custom_1730397112725{margin-top: 15px !important;margin-right: 0px !important;margin-bottom: 30px !important;margin-left: 0px !important;}”][vc_custom_heading text=”Somos ACOPEL (Asociaci\u00f3n Colombiana de Pacientes con Enfermedades de Dep\u00f3sito Lisosomal)” font_container=”tag:h2|font_size:22px|text_align:left|color:%23000000″ use_theme_fonts=”yes” css=”.vc_custom_1726076965621{margin-top: 0px !important;margin-right: 0px !important;margin-bottom: 15px !important;margin-left: 0px !important;}”][vc_custom_heading text=”Somos una entidad sin \u00e1nimo de lucro fundada en 1997 con 25 a\u00f1os de experiencia; registrada ante la C\u00e1mara de Comercio de Bogot\u00e1 y con vigilancia de la Alcald\u00eda Mayor de Bogot\u00e1.” font_container=”tag:div|font_size:18px|text_align:left|color:%23000000″ use_theme_fonts=”yes” css=”.vc_custom_1726077116842{margin-top: 0px !important;margin-right: 0px !important;margin-bottom: 12px !important;margin-left: 0px !important;}”][vc_custom_heading text=”Buscamos contribuir en la calidad de vida de los pacientes con Enfermedades de Dep\u00f3sito Lisosomal (EDL) y otras Enfermedades Hu\u00e9rfanas (EH), frente a su condici\u00f3n de salud y desempe\u00f1o en la sociedad, apoy\u00e1ndolos en la b\u00fasqueda de soluciones para su tratamiento integral y su bienestar f\u00edsico y emocional.” font_container=”tag:div|font_size:18px|text_align:left|color:%23000000″ use_theme_fonts=”yes” css=”.vc_custom_1726077048565{margin-top: 0px !important;margin-right: 0px !important;margin-bottom: 0px !important;margin-left: 0px !important;}”][\/vc_column][\/vc_row][vc_row][vc_column][vc_empty_space height=”40px”][vc_empty_space height=”30px”][\/vc_column][\/vc_row][vc_row css=”.vc_custom_1726078208693{background-image: url(https:\/\/webn.acopel.org.co\/wp-content\/uploads\/2017\/05\/Rectangle-663.jpg?id=454) !important;}”][vc_column][vc_empty_space height=”70px”][vc_custom_heading text=”\u00bfQu\u00e9 nos inspira?” font_container=”tag:h2|text_align:left|color:%23008ecf” use_theme_fonts=”yes” css=”.vc_custom_1730397121481{margin-top: 0px !important;margin-bottom: 30px !important;}”][vc_custom_heading text=”En nuestros 25 a\u00f1os, los pacientes y sus familias han sido nuestra mayor inspiraci\u00f3n para reconocerlos m\u00e1s all\u00e1 de su condici\u00f3n de salud, como seres integrales con diferentes necesidades, prop\u00f3sitos y sue\u00f1os.<\/p>\n

Nos inspira seguir promoviendo su bienestar integral y su calidad de vida, involucrando su entorno familiar a trav\u00e9s de diferentes iniciativas encaminadas a brindar educaci\u00f3n en la enfermedad y en las rutas para la interacci\u00f3n con el sistema de salud. Queremos velar por el acceso a los servicios, acompa\u00f1ar los procesos de salud, realizar abordajes psicosociales a trav\u00e9s de una caracterizaci\u00f3n donde recogemos informaci\u00f3n sociodemogr\u00e1\ufb01ca, de salud, de educaci\u00f3n, laboral y familiar de los pacientes; siendo nuestro principal insumo para el desarrollo de iniciativas enfocadas en las necesidades de los pacientes y tambi\u00e9n para sustentar las solicitudes elevadas ante los tomadores de decisiones. Nos sigue motivando trabajar por un pa\u00eds donde el sistema de salud brinde posibilidades de atenci\u00f3n con equidad de manera sostenible y con interacci\u00f3n de diferentes actores, donde las organizaciones de pacientes tengan un papel relevante.<\/p>\n

El traspasar fronteras llevando nuestra experiencia es un reto que queremos seguir enfrentando, vinculando diferentes pa\u00edses e intercambiando buenas pr\u00e1cticas.” font_container=”tag:div|font_size:18px|text_align:left|color:%23000000″ use_theme_fonts=”yes” css=”.vc_custom_1726078383201{margin-top: 0px !important;margin-right: 0px !important;margin-bottom: 0px !important;margin-left: 0px !important;}”][vc_row_inner][vc_column_inner offset=”vc_hidden-lg vc_hidden-md vc_hidden-sm vc_hidden-xs”][apus_features_box items=”%5B%7B%22image%22%3A%22468%22%2C%22title%22%3A%22Charity%20For%20Education%22%2C%22description%22%3A%22Start%20an%20avocado%20orchard%2C%20send%20a%20child%20to%20school%20or%20invest%20in%20a%20single%22%7D%2C%7B%22image%22%3A%22466%22%2C%22title%22%3A%22Charity%20For%20Health%22%2C%22description%22%3A%22Discover%20how%20far%20your%20investment%20dollars%20can%20go%20to%20assist%20families%20and%20vulnerable%22%7D%2C%7B%22image%22%3A%22467%22%2C%22title%22%3A%22Charity%20For%20Food%20%22%2C%22description%22%3A%22Our%20support%20creates%20self-sustaining%2C%20powered%20communities%22%7D%5D” number=”3″ style=”default”][\/vc_column_inner][\/vc_row_inner][vc_empty_space height=”30px”][\/vc_column][\/vc_row][vc_row][vc_column][vc_empty_space height=”60px”][\/vc_column][\/vc_row][vc_row gap=”35″][vc_column width=”1\/2″][vc_icon type=”openiconic” icon_openiconic=”vc-oi vc-oi-target” color=”custom” css=”.vc_custom_1733580322709{margin-bottom: 20px !important;}” custom_color=”#1e2a4e”][vc_custom_heading text=”Nuestra Misi\u00f3n” font_container=”tag:h2|font_size:30px|text_align:left|color:%23008ecf” use_theme_fonts=”yes” css=”.vc_custom_1733580331853{margin-top: 0px !important;margin-bottom: 30px !important;}”][vc_column_text css=””]<\/p>\n

ACOPEL<\/strong> busca promover procesos que beneficien la calidad de vida de los pacientes y sus familias con una mirada social integral de \u00e9stos y su entorno.<\/p>\n

[\/vc_column_text][\/vc_column][vc_column width=”1\/2″][vc_icon type=”entypo” icon_entypo=”entypo-icon entypo-icon-rocket” color=”custom” css=”.vc_custom_1733580593724{margin-bottom: 20px !important;}” custom_color=”#1e2a4e”][vc_custom_heading text=”Nuestra Visi\u00f3n” font_container=”tag:h2|font_size:30px|text_align:left|color:%23008ecf” use_theme_fonts=”yes” css=”.vc_custom_1730396622096{margin-top: 0px !important;margin-bottom: 30px !important;}”][vc_column_text css=””]<\/p>\n

Para el 2029 pretendemos ser referentes nacionales en enfermedades hu\u00e9rfanas. Promoviendo una visi\u00f3n integral de las necesidades de los pacientes y de sus familias, m\u00e1s all\u00e1 de los servicios de salud buscando el pleno goce de su bienestar como miembros activos de la comunidad.<\/p>\n

[\/vc_column_text][\/vc_column][\/vc_row][vc_row css=”.vc_custom_1493720968014{background-color: #222222 !important;}”][vc_column width=”1\/12″ el_class=”skew-theme-right” offset=”vc_hidden-lg vc_hidden-md vc_hidden-sm vc_hidden-xs”][vc_empty_space height=”50px”][vc_custom_heading text=”Become A Volunteer” font_container=”tag:h2|font_size:24px|text_align:left” css=”.vc_custom_1545986718618{margin-top: 0px !important;margin-bottom: 0px !important;}”][vc_custom_heading text=”When a community gets access to clean water, it can change just about everything. It can improve health
\nincrease access to food, grow local sio economies, and help kids.” font_container=”tag:div|font_size:16px|text_align:left” css=”.vc_custom_1545986722251{margin-bottom: 0px !important;}”][vc_empty_space height=”50px”][\/vc_column][vc_column width=”1\/12″ offset=”vc_hidden-lg vc_hidden-md vc_hidden-sm vc_hidden-xs”][vc_empty_space height=”70px”][vc_column_text css=”.vc_custom_1493720950790{margin-bottom: 0px !important;}”]<\/p>\n

JOIN WITH US<\/a><\/p>\n

[\/vc_column_text][vc_empty_space height=”50px”][\/vc_column][\/vc_row][vc_row css=”.vc_custom_1493775794333{background-image: url(https:\/\/webn.acopel.org.co\/wp-content\/uploads\/2017\/05\/Rectangle-663.jpg?id=454) !important;}”][vc_column offset=”vc_hidden-lg vc_hidden-md vc_hidden-sm vc_hidden-xs”][vc_empty_space height=”40px”][vc_empty_space height=”30px”][vc_custom_heading text=”Meet Our Volunteers” font_container=”tag:h2|font_size:30|text_align:left” css=”.vc_custom_1545986726555{margin-top: 0px !important;margin-bottom: 30px !important;}”][vc_row_inner][vc_column_inner][apus_volunteers columns=”4″][\/vc_column_inner][\/vc_row_inner][vc_empty_space height=”30px”][vc_empty_space height=”40px”][\/vc_column][\/vc_row][vc_row css=”.vc_custom_1493775883407{background-color: #fafafa !important;}”][vc_column offset=”vc_hidden-lg vc_hidden-md vc_hidden-sm vc_hidden-xs”][vc_empty_space height=”40px”][vc_empty_space height=”30px”][vc_custom_heading text=”Testimonials” font_container=”tag:h2|font_size:30|text_align:left” css=”.vc_custom_1545986731498{margin-top: 0px !important;margin-bottom: 30px !important;}”][apus_testimonials number=”12″ columns=”3″][vc_empty_space height=”40px”][\/vc_column][\/vc_row][vc_row css=”.vc_custom_1493776294665{background-color: #ffffff !important;}”][vc_column offset=”vc_hidden-lg vc_hidden-md vc_hidden-sm vc_hidden-xs”][vc_empty_space height=”30px”][vc_empty_space height=”40px”][vc_row_inner][vc_column_inner offset=”vc_col-lg-3 vc_col-md-3″][vc_custom_heading text=”OUR MOST TRUSTED SUPPORTING PARTNERS” font_container=”tag:h2|font_size:22|text_align:left” css=”.vc_custom_1545986736378{margin-top: 0px !important;margin-bottom: 0px !important;}”][\/vc_column_inner][vc_column_inner offset=”vc_col-lg-9 vc_col-md-9″][apus_brands number=”15″ layout_type=”carousel” columns=”5″][\/vc_column_inner][\/vc_row_inner][vc_empty_space height=”40px”][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

[vc_row][vc_column][vc_empty_space height=”40px”][vc_empty_space height=”30px”][\/vc_column][\/vc_row][vc_row][vc_column width=”1\/2″][vc_empty_space height=”50px”][apus_video image=”1636″ video_link=”https:\/\/www.youtube.com\/watch?v=thYGauBz5sA”][vc_btn title=”Conoce nuestra historia aqu\u00ed” style=”outline-custom” outline_custom_color=”#008ecf” outline_custom_hover_background=”#008ecf” outline_custom_hover_text=”#ffffff” shape=”round” css=”.vc_custom_1726078657420{margin-top: 20px !important;}” link=”url:https%3A%2F%2Fwww.acopel.org.co%2F25aniversario%2F|title:25%20a%C3%B1os%20de%20Acopel|target:_blank”][\/vc_column][vc_column width=”1\/2″ css=”.vc_custom_1493716942055{padding-left: 45px !important;}”][vc_custom_heading text=”\u00bfQuienes Somos?” font_container=”tag:h2|text_align:left|color:%23008ecf” use_theme_fonts=”yes” css=”.vc_custom_1730397112725{margin-top: 15px !important;margin-right: 0px !important;margin-bottom: 30px !important;margin-left: 0px !important;}”][vc_custom_heading text=”Somos ACOPEL (Asociaci\u00f3n Colombiana de Pacientes con Enfermedades de Dep\u00f3sito Lisosomal)” font_container=”tag:h2|font_size:22px|text_align:left|color:%23000000″ use_theme_fonts=”yes” css=”.vc_custom_1726076965621{margin-top: 0px !important;margin-right: 0px !important;margin-bottom: …
Continue reading Quienes Somos<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"give_campaign_id":0,"footnotes":""},"categories":[],"class_list":["post-1638","page","type-page","status-publish","hentry"],"campaignId":"","_links":{"self":[{"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/pages\/1638","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/comments?post=1638"}],"version-history":[{"count":0,"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/pages\/1638\/revisions"}],"wp:attachment":[{"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/media?parent=1638"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/acopel.org.co\/webn\/wp-json\/wp\/v2\/categories?post=1638"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}